I started this blog to tell my story with lymphoma was over ... I do not think so, and that's what led me to write so much: not because I did not have time, but because you do not longer a matter of telling a distant thing, but very current, which however should be true on a blog ... well, I came back the urge to write and here I am. It seemed right to anticipate something of the my story, not least to better understand where they come from my "knowledge" not only as doctor but as a patient.
So I found out I had Hodgkin's lymphoma (and resume my story here in the next post), I did ABVD cycle that in most cases leads to healing, and radiation therapy and six months after the ... TAC has discovered a recurrence. So: chemo again (after having replaced a central venous access, this time a Port-a-cath, a first Hohn) and transplantation after conditioning with chemotherapy with cisplatin and high-dose AraC (can not remember now all the drugs but write them at the time ...), but the transplant was not enough, then now I'm doing IGEV and waiting for the donor transplant
... All this time I did transfusions, lost his hair a bit 'of times, made venous access common and less common (the coax in the femoral vein for collection of stem because my peripheral veins after chemo are a bit 'disgusting ... twice), spent whole days in day hospital for coming to last but sometimes decent luck to hours, waiting for calls to the hospital, admissions made in isolation, not I had nausea when everyone has it but I also just threw up when I had to, and meanwhile they are also returned to work and I was on holiday in Sardinia, Malta and Dublin!
All these experiences from "patient" taught me so much. When I get back to work I'll be a different doctor (regardless of the limitations that unfortunately, given my work a bit 'special, I'll accept). But I'd like to share what I learned with anyone willing to read this blog. Maybe it might be useful to someone. Maybe those who know me will find something that I do not know. And maybe someone who is having similar stories will mean to her and comment ... would be nice!
Here. Starting today, two stories, past and present, will travel in parallel.
0 comments:
Post a Comment